Tethered Spinal Cord & Helping with Understanding Blood Draws
We're always amazed to see support and stories for other mamas about their experiences with difficult medical situations. Cindy recently emailed us about her child's diagnosis of Tethered Spinal Cord. Have you experienced this? And can you give her some advice?
I am seeking information from your wonderful community. I have a wonderful six year old boy (almost seven!) who has been struggling with potty training for most of his life. We were finally referred to a Pediatric Gastroentologist about six weeks ago and found out yesterday that he likely has a Tethered Spinal Cord. We have to confirm with a Neurosurgeon and discuss treatment options. However, our doctor and apparently all of the information available on the internet, says that surgery is the only effective option.
I would love support on a couple of fronts. First, has anyone gone through this surgery with their child? We had to use General Anesthesia to do the MRI this week so I know he tolerates that anesthesia well. The anesthesia for the surgery may be different. I am also finding information on-line that says once nerves are damaged, there is no repairing them. Does anyone out there know if he may, someday, have control over his bowels and bladder?
The other element I’m interested in is how to help my four year old through this chapter of our lives. We had to have blood drawn on my six year old several weeks ago for this issue. My four year old and I had to take him and I think the little guy was the most upset out of all of us. He somehow has associated blood with dying and so any quantity greater than just a scratch really scares him.