Sensory Integration Disorder - Questions!
Keith posted a comment recently seeking recommendations from the urbanMamas community:
My wife and I (can I be an UrbanPapa?) (urbanMamas note: Keith, of course you are an urbanPapa!) have a 5 year old with SID, and are trying to navigate the process. Throughout, it can be very intense and we worry about getting the right supports for our son, we fret over the intensity of what we have to manage . . . we just want to get it right, and help him be happy.
He is in a Montessori school that has been a good fit for him, and since his referral from the ESD he is in program at Grout for kids with special needs. They're serving him for adaptive and social/emotional delays there.
We're doing OT at Therapy Solutions now for his SID. We have been happy there and are looking forward to working with Barbara Avila who does RDI (Relationship Development Intervention) training for parents. Challenge is that it's not covered by our insurance, and costly.
- Who is doing the best OT work for SID locally? Is there anyone who is an expert, as opposed to "Yeah, we do 'some of that'"?
- Does anyone have any strategies to manage uber-tantrums? We feel our son's tantrums are anxiety driven, and when he goes there, he screams uncontrollably, kicks, hits, etc. Very little seems to work, short of restraining him, and just re-assuring him that we love him, we're there for him, etc. It's emotionally exhausting for all of us (including, we suspect, his 3 year old brother). Help. Any ideas?
- Has anyone done any RDI work and found it helpful for SID?
- Is there any support group going out there? We live in SE, Mt Tabor area.